The NHS in England, Scotland and Wales along with Health and Social Care Northern Ireland, NHS Digital, Genomics England, Health Data Research UK, Public Health England and Clinical Practice Research Datalink (CPRD) announced today that they will create a non-profit association to accelerate progress in medicine and health.
The UK Health Data Research Alliance, supported by Health Data Research UK, will develop and co-ordinate the adoption of tools, techniques, conventions, technologies, and designs that enable the use of health data in a trustworthy and ethical way for research and innovation. Its founding members will formulate best practice and standards in areas such as privacy, transparency, public engagement, inclusivity and governance to ensure that health data is shared and used responsibly by researchers and innovators.
For the first time, the Alliance will unite expertise to establish best practice in the stewardship of the UK’s health data – including patient data from the NHS, genomic data and other molecular data – to enable faster, more efficient access for research at scale. This will speed up progress in science and medicine at a pace never achieved before in the UK.